water-soluble graphite painting of sweetgum tree by emily weil

daily painting | sweetgum tree

On the lovely Aldersly grounds in San Rafael, the skilled nursing facility where my brother now resides, there is a large, lovely shade tree on a lawn near a bench where Jim likes to rest after he does a few laps on the pathways in his walker to stretch his daddylonglegs (he’s 6’5”). Yesterday I rode my bike down to an Alameda nursery to ask for help in IDing the tree; with their help my best guess is American Sweetgum (Jim and I are curious).

Jim (or James or Jamey depending on my mood) thinks it would be nice to die under that tree. I agree. We have lots of deep talks about his ending as the galloping brain cancer takes over, and he may decide to use the MAID (“Medical Aid In Dying”) drugs to end things sooner rather than later so he can fulfill his desire to die outside. Lots of ongoing discussions on that topic. 

Yesterday was a rest day. I was knackered; a recent talk with bro was emotional and intense as we hashed out my concerns he is married to someone who emotionally batters him (there have been many conversations along those lines in recent years). I’ve long been concerned for him, as have been his closest friends who adore him. But the bashing has been so effective he adapts rather than confronts. I am nervous about explicitly writing about this family drama, but the model of abused/abuser is classic — denial, obfuscation, excuses — and I believe in being open about these painful topics as it’s something we don’t talk about. And we need to talk about it. I’d worry a bit if I was alone in my view, but his considerable group of supporters all share the same opinion.  

And I am powerless. Except to support and love him as he gets ready to leave this world and I am glad for him. No more brain cancer, no more Parkinson’s, no more spousal assaults. He’ll be done. The thought of being left behind makes me double over with stabbing stomach pains. But here I am. Armed with my pink pepto-bismol. I’ll be OK. 

10″ x 10″ ink, artgraf graphite, ink, watercolor on paper = $130

 

 

 

watercolor, ink painting of roses by emily weil

daily painting | roses

Tired, so tired. Friends at times remind me how taxing caregiving is, and how exhausting grieving is. Yes and amen; I’m there. And trying to cut myself some slack as I hear inner voices telling me I’m lazy or I should be more productive. Get back, mean critics who live in my head! Go and bully someone else (happy to share a few suggestions).

I have frequent conversations with myself. Sometimes I am gentle and follow my therapist’s direction to be as loving and compassionate with myself as I am with my dying, vulnerable brother. Sometimes I feel like an utter failure in life, wondering how I got here. Other times I think I am brave and sturdy, getting up every day and moving forward. 

My dear bro is considering end-of-life options, perhaps employing MAID — Medical Assistance in Dying. Either with this choice or letting the cancer take over his brain, he has an abbreviated future. And I support whatever he chooses. It is, after all, completely up to him. Some in the fam disapprove of this possibility and I hope he follows his own truth. He’s so steady — a decent and kind man. The staff in his skilled nursing facility are fond of him as he is not demanding or difficult. But his life is small and getting smaller, and though he is not in pain, it isn’t a happy existence. And he lets me frequently pester him to get up and take a walk outside or ask him to tell me anecdotes from his 79 years on the planet or discuss the dynamics in our family or explore death options. These moments are often sweet and intimate and I will hold them dearly in my heart for the rest of my years. I am deeply grateful. 

10″ x 10″ ink, watercolor, pastel on paper = $130